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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 4 days ago | Replies (6026)

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@jesfactsmon

@parrotqueen
Hi, just wondering what your experience has been using boron for fibro. We started taking boron (3 mg/day) a couple months ago or more based on some info provided by @onamission . Also wondering how you arrived at 6 ml of boron 3-4 times per day? According to Google, 1 ml = 1g. From that it would seem that you are taking at least 18 g of boron per day. But I must be misunderstanding this because that would be way too much from what I have read.

Thanks in advance for any info you can provide. I am very interested in this. Best, Hank

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Replies to "@parrotqueen Hi, just wondering what your experience has been using boron for fibro. We started taking..."

Sorry I meant to say 6 mg of boron three to four times a day - I'm taking about 21-24 mg per day. I arrived at that dose based on what it took to get rid of all my RA and OA pain. I think it helps with fibromyalgia also. But what really helped with fibromyalgia is I went off ALL sugar. It's hard to do that - there are over 187 names for sugar and you have to know them all in order to avoid it. Going off all sugar fixed almost everything in my body! I am following the diet in the book called The Candida Cure by Ann Boroch - I've been doing it for six years almost and although I am going to be 70 soon, many days I feel like I'm in my 20s. I also take turmeric, boswellia serrata, multivitamin, B complex, vitamin D3, vitamin K2 (mk4, mk7), vitamin C, aloe vera, bioquercetin, zinc, calcium, magnesium, boron (approx. 20 mg/day), collagen peptides, CoQ10, PQQ, NAC, sunflower lecithin (works great for memory), and more. The boron just took all my skeletal pain, arthritis pain, fibromyalgia pain - all of it. I have a tough time taking many prescription meds - so I rely heavily on herbs, vitamins, minerals. I have a lot wrong with me such as hypopituitarism (due to a pituitary tumor), and about 15 autoimmune diseases from myasthenia gravis to rheumatoid and osteoarthritis, hidradenitis suppurativa (which is controlled by turmeric), Reynaud's (which stopped by I don't know how or why it stopped), and peripheral neuropathy. I also have Mitral Valve Prolapse and Panic Disorder. Going off sugar helped everything on my body and I lost a bunch of weight, I read that somebody here has carpal tunnel - I had surgery for that 30 years ago and it fixed it instantly and I wondered why I didn't do it sooner,. (I type 130 wpm and was a pianist.). I hope something I have written here will help somebody. I got my peripheral neuropathy down to just bugging me maybe 2-3 nights every month or two. I used to wake up in horrible pain every morning with PN pain. I'm not sure what caused it to stop bugging me who much - I was hoping the PQQ (which must be taken with CoQ10 - and NAC rounds it out nicely). Now and again it will bother me for a couple days, then it disappears again. I find cannabis CBD is VERY effective for almost any pain. It made me a little bit sleepy the first few times I took it - now I only feel relief when I use it.

So Hank (jesfactsmon), somewhere in all that, my fibromyalgia just disappeared. I think sugar had a big part in it, I DO take gabapentin (900 mg 3-4 times a day), boron, and all that other stuff. The PQQ may also play a part in that. And staying active is also important.

I have to say the usual disclaimer of be sure to ask your doctor before you do anything serious. My doctors didn't know what to do to help me - so I just took off on my own. My infectious disease doctor knows everything I am doing and approves.

I have read research that up to 20mg is safe. Sunnyflower