Is this group still here? I have had autoimmune sensory ganglionopathy well when they diagnosed me it was probably 2 years ago but I've been it just happened quickly. It's been three and a half years since I've been normal. I just I'd like to know what people have done how they get through it how they get through the day. Having it sucks have good days bad days. I got sick recently and when I did my body kind of broke down again. My neurologist says that is normal that I cannot get as bad as I was it should never on a relapse I guess is the word. Fingers crossed but I was walking with a walker obviously but I could do a lot. However since getting sick I don't have the energy I'm tired all the time again I can't walk very far I refuse to be back in a wheelchair. I just want some insight what kind of drugs have we have you tried what works what didn't work I've been through a lot. Any help would be awesome
Thank you in advance