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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
After living with my husband's pain for the last fifteen years, I learned NEVER to say the words, "I understand." How on earth could I understand the torment that man lived with? I'd watch him get up and literally crawl across the floor into the bathroom because it was too painful to walk. He'd take his shower and I'd hear him throwing up as he got dressed and then he'd emerge from the bathroom, kiss me on my cheek, ruffle my hair as if nothing was wrong and disappear into the work day.
I STILL hear him throwing up in the morning from his pain, but now I hear his sobs from my recliner in the den because I can't lie flat beside him due to my own pain shimmering down my legs 24/7. Now, he doesn't leave for work and neither do I. Two careers gone because lives of pain took their place. Lives of intimacy gone only to be replaced by mornings of agony.
How do you share such things with people who only learn about blood pressure, heartrates, and scales as measurement of pain? You don't. You simply say my pain is 9 because if it was a 10, I'd be in the hospital.
Replies to "After living with my husband's pain for the last fifteen years, I learned NEVER to say..."
@faithwalker007 my thoughts and prayers are with you and your husband. I don’t have near the pain you do but feel many times each day that I am going to lose my mind. Pain is such an insidious thing that takes your whole essence away from you most of the time.
@faithwalker Renee, your writing cuts me like a knife. You write too well. I can't bare how you describe your life, as it is mine, and all of us here. I have this deep forgiveness inside of me, as people that don't live this, cannot understand it. If they are inappropriate and their responses to me don't quite "cut it," I am happy for them. It means they are well, and for that, I am greatful. No one should understand this, ever. LoriRenee1
Renee, your story just broke my heart. I mean tears. Literal.
I will be upholding you and your husband in some serious prayer.
I understand writhing in pain with tears rolling only too well. What you said about the type of person I talked about facilitating a support group was very well said. I 'm sure many have the right heart and are compassionate but they can't empathize unless they have experienced the kind, level and duration of pain that most of us here have.
I' ve said it so many times that the only thing that gets me through is knowing God so intimately and His comfort and peace through Christ which surpasses human understanding.
I can't wrap my mind around Christ's sacrificial, unmerrited, immeasurable, boundless and free love for us and how it gives me assurance that I can trust Him in my circumstances, that He has a higher purpose in them.
Romans 8:18 : "For I consider that the sufferings of this present time are not worthy to be compared with the glory that is to be revealed to us."
Psalm 147:3 "He heals the brokenhearted and binds up their wounds"
I wish all of this for you and your husband. Warmest blessings, Sunnyflower 🙏😊🤗🙏
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@faithwalker007
Renee, extremely good info in these 3 posts. And so eloquent as usual. Your inputs are so good, although heartbreaking to hear of your and your husband's struggles. Thank you.