← Return to Urologist, Oncologist, Hematologist - who is in charge of my case?

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You are in charge!
My experience may be analogous to your situation.
I was being treated by a well regarded gastroenterologist for radiation proctitis. My RO deferred to him. After a long course of treatment with sucralfate, I thought that hyperbaric oxygen treatment should be my next step. My gastro doctor did not agree. My urologist was very supportive of getting hyperbaric oxygen therapy. While I wanted the HBOT treatment my personal calendar was not quite conducive to six weeks of treatment (perhaps not my best decision to prioritize deer hunting season and other events on my calendar but I decided that I could wait several months). I took the approach of repeatedly lobbying for a referral from my gastro.
Eventually he referred me to the HBOT treatment staff in the same hospital. I received the treatment and my symptoms of radiation proctitis receded significantly.

BTW, I quit Orgovyx after one year against my urologist's recommendation. I was ready to look for another urologist if he had refused to see me after I quit the ADT. (I had severe joint pain at that time.) That was 5 years ago, and my PSA continues to hover around 0.1 and my urologist says I am doing much better than he expected.

If my decisions for my care had resulted in a poor outcome, I was ready to accept responsibility for those decisions. I'm glad that I "rolled the dice".

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Replies to "You are in charge! My experience may be analogous to your situation. I was being treated..."

@ededed I'm in the application process for HBOT and it appears I'll be approved, but my current issue is that I have a level of bowel frequency and urgency that disallows my being locked up anywhere other than near a toilet for as long as two hours (I had six bowel movements between 3:45 A.M. and 9:30 A.M this morning, but then they stopped and I was able to attend a church service uninterrupted). I have written my gastroenterologist for help with a solution. He was reluctant to prescribe Lomotil at last visit due to its being a controlled substance, but Imodium is inadequate for me at this point. At my initial HBOT consult, the PA commented that they can take care of the bleeding and they can "help" with frequency and urgency. The Mesalamine suppositories I took in April worked pretty well, but I'm taking them again in June and they haven't affected me yet. I'm in my last two weeks of eighteen months of Orgovyx.