@britton62
You are feeling typical symptoms. Only with patience with yourself and time will the symptoms resolve when your body decides reject PMR. Hopefully you can be a candidate for kevzara which will relieve you of prednisone and its wrath on the body.

Hello @britton62, I would like to add my welcome to Connect along with @caroljeand and others. You might want to scan through the discussions on PMR and fatigue here on Connect. Here's a search with the links to the discussions - https://connect.mayoclinic.org/search/discussions/.

@britton62
I am a 78 year old female diagnosised with PMR 6 months ago. I have gone from 15 mg prednisone down to 6 mg.
When I was at 9 mg I experienced a lot of fatigue. I was also experiencing a re occurring hip pain which I get cortisone injections for every 4 to 6 months. I did play around with my prednisone also at the time but it didn’t seem to help. I ended up staying at 9 mg for 6 weeks plus the cortisone injection. The fatigue has improved but I am less active then I was.

@britton62 Sorry to hear you go through this. Several people on these chats have given really great information. I cannot give advice, these are just my own thoughts. One thing that I only understood quite recently was that PMR and Pred tapering are so very separate. I was thrilled my tapering rather quickly off pred was going perfectly with no side effects. Back in gym, felt like super woman. Most likely as I had only been on pred about 2 months, my adrenal glands had only been on vacation for a short period, hence no pred withdrawal symptoms. Once down to 1.25MG PMR was back, it had never left. The underlying condition might (seems from this forum) take about 2 years to burn itself out. Also the fatigue yes, as well as shoulder pain. Guess not much we can do but keep pushing through this.

@britton62 a healthy diet seems to help best I have noticed but I know your pain. I miss me from 9 months ago. I was so active and now everything seems to exhaust me.