Thank you so very much. I am also at physical therapy twice a week and until Anastrazole have progressed significantly (except for the headache migraines on Letrozole).

The sudden additional back pain, which I have had a little of before, has been assessed in the emergency department at Mayo three times with multiple scans and I have some cysts in a few areas but not on my spine. I do have hemangiomas on the spine. They singled that out for me as a CT on Friday. I have had so many scans over the months I cannot count them all.

I have been a patient on 4C at Neurology after a mini stroke that impacted my right hand for a short while. They took care of me wonderfully. They also scanned my brain for the headaches. I don’t have them when off the pills. The dental doctors believe this may be TMJ and the pills go after its weakness.

I have also been in observation after my surgery in the fall of last year for my enzymes being very “off” as a left over from the surgery anesthesia they believe. This resolved over time, but was disturbing.

I have good physical therapy twice a week but the first Anastrazole attack of pain was so bad that I now have repetitive pain in my back; so hard to handle. I was in the ED last Friday. My spine has lost a lot of bone and I have lost 2 1/2 inches and have more chronic issues in my back from top to bottom. The results were detailed. I also have rib issues which are on my left side where I had a hernia after a cancer removal 20 years ago (DFSP). I think the mesh from the hernia is now clearly embedded in my tissue and when I eat, it hurts the rib cage. I have areas of the lung that have depleted due to this but my lung capacity is still good. The ribs always hurt since 2000 but I was able to get shots for it and, now the pills have taken their toll, the pain has started again.

I have done a lot of research and can only go so far. I have been off the pills twice for short periods and the loss/reduction in headaches is palpable and so is the bone pain.

I will be talking to my oncologist next week and discussing next steps. I talked with my daughter and she and I both agree that if this cannot be resolved then I have to make a decision that will give me quality for whatever time I have left in my life, hoping for a lot more. I turn 71 years tomorrow and, all Signatera tests have been negative so far. I am was a 1C, but a 1A initially. I had one node impacted. I want to continue to travel and enjoy this planet. I don’t want to be curled up with a heating pad every day, and visiting the hospital so often.

I so appreciate you. I agree that I need and want some peace in this tough medical and political time and to enjoy my family of whom some are in other countries.

Thank you. Please keep in touch I am in the group sessions now at Mayo online.

Best to you. Thank you for cheering me on!