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Intrathecal Pain Pump

Chronic Pain | Last Active: 10 hours ago | Replies (207)

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Profile picture for bkhc54 @bkhc54

@sbb4512 I have fibromyalgia, sjogrens, RA, OA, Lupus, CMT with 8 surgeries, degenerative spinal disc disease on and on. I’ve had over 25 surgeries with knee surgery coming up.
I’ve been unable to find a doctor willing to address my chronic pain. With the “Opioid Crisis” being center stage, many chronic pain sufferers are left without treatment. Maybe the state of Oregon has tougher laws but no one will discuss any pain meds with me. There is a highly regarded surgical rheumatologist/professor at our large teaching hospital in Portland, Oregon Health Science University or OHSU which is 1 1/2 hours away from where we live. He is willing to do the surgery to implant the pump but wants me to have a provider nearby to refill the pump and take care of any problems. No one will do that. I have been taking Tramadol for 35 years but I don’t think that helps anymore. I’ve tried epidural injections in my low back and it worked for 2 weeks. It would’ve been better had I not felt so great only to have my back pain come back.
I guess I’m asking what you did to have a doctor listen to you. I’m tired of lying down with my joints and muscles feeling like they are on fire.

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Replies to "@sbb4512 I have fibromyalgia, sjogrens, RA, OA, Lupus, CMT with 8 surgeries, degenerative spinal disc disease..."

@bkhc54 I am so sorry. But i can relate to everything u say. Y ou need to go to a pain clinic, U have to get a referral from PCP, or whoever will give it to you. I' have gotten treatment for years. I got a substitute pain doc, & she looked at my diagnosis & said that i must need Dilaudid I couldn't believe it. She put me on Dilaudid pills, 2 mg every 4 hours However, i hate to say it. The horrendous nerve pain, sciatica, 360 degrees, down both legs & feet, toes isn't helped that much, even with the Dilaudid Dilaudid is much stronger than Morphine I live in a suburb of Phoenix & there are pain clinics everywhere. However, if you have a lot of medical ;problems, Pain clinics don't deal with them I wouldn't say that the doctors here, ;listen to you. Can u go to a Mayo clinic ? I can't afford it, but it seems like the best option Please excuse me for typos etc, I haven't been sleeping at all