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@heisenberg34 Think you got it wrong. I didn't progress past the trial. I didn't go further, because 90 Percent of me pain is nerve related & nobody can tell me if the pump works primarily on nerves. Since most of my pain is nerve related, i have gotten fed up with it all. I have so much pain & i decided that i probably need a better pain doctor. The attitude around here, is that you need to toughen it up. No one believes that there is such a thing as Arachnoiditis. Or if there is, they don't want to deal with it. I have tried many things, but have gotten such a rotten response, it all very depressing. I have gotten fed up with it all. I am tired of lousy attitudes of doctors. I do not go around and beg for pills. But i would like the option of trying morphine pills or a fentanyl pain patch. They may offer me more , but it's the same thing. I know that Morphine works, but they won't give it to me outside the hospital. If i ask for morphine in the hospital, they call me an addict. I have dealt with the ridiculous and archaic attitudes of the doctors. Morphine & fentynl work, but no one willing to give either drug to me
Replies to "@heisenberg34 Think you got it wrong. I didn't progress past the trial. I didn't go further,..."
@laurenseavertson789
I too, have Adhesive Arachnoiditis. After 20 years of continuous treatment with opioids and a Medtronic Pain Pump, in 2016 during the CDC great purge I was given 30 days to manage the withdrawal. Needless to say that was a horrible experience. I spent the past 10 years where you are now. I spent 5 days in the Barrow Institute in Phoenix and was finally get access to effective pain management. While in the hospital my diagnosis’s were confirmed and with no cures available, I had asked for and received a Palliative Care diagnosis. This is close to the quality of care I experienced from 1995-2016 without the arbitrary government imposed limits and where we are now. There is much confusion by each state with regard to the definition of Palliative Care, but most every state has passed legislation establishing the right to care for those of us with incurable conditions that have intractable pain as one of the components. It took me 10 years and numerous attempts in multiple locations and finally I have some stability in my life. It is the only viable option available to us. Take care
Darrell
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@laurenseavertson789 Excuse me, i meant Dilaudid. Dilaudid works but have been told that they can't prescribe it. Very bad attitudes about narcotics around here. Ive known what works, but been denied it due to the attitudes here in the Phoenix area