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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@erikas

@jessamyn Regarding, "How do you build your faith?, many members find healing and solace in faith. You may wish to join this discussion:

- How Spirituality Can Help Stress https://connect.mayoclinic.org/discussion/how-spirituality-can-help-stress/

You also mention that palliative care has been suggested for your mom. Palliative care is more appropriately named Symptom Management care or Comfort Care. It is not exclusively care meant only at the end of life, but is specifically focused on managing pain and other symptoms that affect quality of life. It is a holistic approach dealing with physical symptoms and emotional and spiritual needs as well, and can involve family members, not just the patient. I encourage you and your mom to look into it.

On the one hand you feel maybe you should take your mother's pain, "more seriously" but on the other hand you feel numb to it because it is all you have ever known. It must be extremely difficult to hear your mother talk about suicide. I saw in another post in a different discussion that you have attended Al-Anon for 11 years. This leads me to believe that you and your mother have a difficult relationship aside from her "pain." Did I get that right?

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Replies to "@jessamyn Regarding, "How do you build your faith?, many members find healing and solace in faith...."

My mom has had an eating disorder for most of her life, but she is not an alcoholic or addict. My dad got sober from drugs and alcohol when I was 5 and it is a family disease so lots of our family have "isms" I also go to ACA adult children of alcoholics. My mom and my relationship has been very strong and kind for most of our lives, we just are less close now, partly because I am distancing myself- both on purpose and not.

Sounds very complicated @sessamyn. As you know I'm sure, that the caregiver can become ill or more ill, or affected in some not so good ways, than the person they are caring for. Yes, this is also true of an enabler which I'm sure you've heard in your Al-Anon meetings, however I am NOT using this principle in that context nor suggesting this is true of you and your mom's relationship.

Are you still active in your meetings online? I'm not a licensed therapist but had a thought just now. I don't know you or your circumstances well enough, but wondered if you've ever considered co-dependent anonymous to try for a meeting or two? The subject may not apply to you and your circumstances with your mom, but there might be some nuggets there to glean?? Just a thought. I do not judge nor know you and your story well enough to know if that would be a good idea.

You are very strong to share your story and I'm so glad you feel you can that here. I know I speak for all of us that we really do care and want to help so please continue to reach out.

Upholding you and your family in prayer, Sunnyflower