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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hello. I am actually here for my mom who is 65 and has been rapidly getting worse for the last year. She is mostly bed bound and completely consumed by her pain all of her waking hours. we started to consider going to the Stanford pain management clinic thinking that she would get a diagnosis there, but it seems that they actually just wanted to look at her pain meds. She is severely depressed and talks about not wanting to have to live with this much pain. But she does NOT want to die. Do you think it would be worth trying to get into the Mayo Clinic or is there somewhere closer to us in California that would be a good program for her? she thinks she might have CRPS and has done all sorts of alternative medical treatments and is one of the most health conscious people I know... I am an only child and don't know what to do. I feel overwhelmed and lonely. Thanks for your input and any resources you might be able to supply. Jessamyn
Replies to "Hello. I am actually here for my mom who is 65 and has been rapidly getting..."
Hello @jessamyn, Welcome to Mayo Clinic Connect. I know it must extremely difficult being an only child and not knowing what to do to help your mother. Thank you for being her advocate in getting help. We recently had a member share her experience with the Mayo Clinic Pain Rehabilitation Center that may be helpful if that would be an option. Each of the Mayo Clinic Campus has one, if the Arizona campus is an option.
Here is the post shared by the member - https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/?pg=1#comment-439036
Here's the Mayo Clinic Pain Rehabilitation Center page that describes the program - https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/featured-programs/gnc-20481713
There is also a discussion on CRPS that you might want to read what others have shared.
- CRPS - anyone suffering with complex regional pain syndrome: https://connect.mayoclinic.org/discussion/crps-anyone-suffering-with-chronic-repetative-pain-syndrome/
I'm sure that looking at all of your Mom's medications is part of any pain clinics process. Do you know what diagnosis was given by the doctors for the medications your mom is taking?
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Hello Jessamyn, I 'd like to extend a very warm welcome to the Connect group! My heart is extremely heavy to learn about your and your mother's journey. I understand pain and suffering very well and the toll it takes on the patient and their loved ones.
You are an angel to care for your mom and put forth the time and effort to try to help her.
I am not sure how to advise you regarding the best place for her but I know many people will reach out here to you and hopefully have the info you need.
I am certain you will receive a tremendous amount of support, encouragement, compassion and information here as I have.
I will be upholding you in prayer that you will have the comfort of God and His peace through Christ (Philippians 4:7), which surpasses human understanding, in your circumstances.
This alone and solely is what gets me through the many fires we all walk through in this life.
I will also pray for much relief for you both and that you will find just the right help you need.
Many blessings and warmest wishes, Sunnyflower. 🙏🌹😊