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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@sunnyflower

HI John, I don't think this is the discussion. I don't remember when or in what discussion it was, but the subject talked about the need for family and friends to adjust their expectations of those of us who are afflicted and suffereing, I had talked about my daughters and that they had essentially placed me in the position of having to validate my poor health by printing my list of health conditions for them to see. They had offered to take turns coming to help me every other week. Nothing ever materialized so some time later I inquired about it and one daughter implied the other said they didn't want to enable me. So I hadn't heard from either and to this day we continue to pay for help.

Many others have talked about their spouses lack of insight/empathy/compassion into their plight/s. My take away is that it's an invonvienence for family and friends to have an afflicted/suffering family member and friends too. Friends fear more will be required in that relationship and it's uncomfortable to be around afflicted/suffering people bc it reminds them of their own mortality. Unfortunately they rob themselves b/c we all have so much to offer other human beings.

Hope that helps you find the discussion. It likely began in a discussion about another topic.

Take care and as always, thanks so much for your help. I was trying to not go off topic and redirect the conversation per the request of the monitors in my discussion w/ @specialty555 when she was sharing about her husband.

Hope you both have a blessed day! Sunnyfower

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Replies to "HI John, I don't think this is the discussion. I don't remember when or in what..."

@sunnyflower I was not able to find a discussion but I did find your post that talks about the topic. It is in the Neuropathy Medications discussion - https://connect.mayoclinic.org/discussion/neuropathy-medications/?pg=4#comment-423296

@sunnyflower, that would be a great new discussion to start with a descriptive title to make it easy to find. Great sleuthing @johnbishop.