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PSMA scan report is in : (((

Prostate Cancer | Last Active: Jun 10 1:51pm | Replies (101)

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Profile picture for Jeff Marchi @jeffmarc

@surftohealth88
The desire to have people get off ADT sooner does seem to have some really significant medical reasoning.

The thing is, it is really only applicable to those with low-grade prostate cancer. Those with Gleason nine or Even lower Gleason scores with aggressive cancer are still getting the 18 months to 24 months recommendation. I have yet to see recommendations to reduce the amount of ADT when the case is aggressive.

I know in my case with eight years on it and 31 months undetectable It would seem that I shouldn’t still be on it. When you bring BRCA2 into the picture, and the fact that I tried reducing Zytiga and it immediately resulted in a big rise in PSA, my oncologist doesn’t think I should get off of it. If I had any of the side effects other people do, I probably wouldn’t be on it, But it doesn’t really cause me any fatigue or other major issues so I continue on. It does start to worry me about the fact it may cause heart issues, since I was in the emergency room getting cardioverted a week and a half ago. I still have lots of skipped beats, much of the day. But that didn’t make any difference when I had surgery and they put me under. The anesthesiologist came to me before having the surgery and he was commenting about issues that could happen if I had an afib event while being operated on. I told him “I won’t have one” and he jokingly said, “you promise?”

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Replies to "@surftohealth88 The desire to have people get off ADT sooner does seem to have some really..."

@jeffmarc
Thanks Jeff for sharing your thoughts about ADT 💗 and sharing your experience with different medications over long time-span - it is very comforting to know that medications can work for many year, although with some worrisome side effects but we just need to persevere (like you ) and take adequate steps to mitigate whatever appears as obstacle on our way.

I admire greatly not only your continuous help and vast shared knowledge here but also your stamina, strength and will to fight this beast and any other challenge heads on 💪, no prisoners taken !!! I am loosing oomph and I hate that about myself now ...

I hope that you are still pain free : )) and I am sure that recovery for you will be super fast 🍀 : ))) ! When will you have device activation ? : ))) I am sending you best wishes for 100% incontinence control 🍀✨ in very near future.