Oh my gracious! I hope they get this all figured for you STAT!! I 'm so sorry!

I have a lot of specialists over the years and also worked as a Medical Assistant for 20 years and coordinated a lot of patient care.

My take away is that we have to be our own advocate and fight like crazy to keep the doctors apprised of our status and ask a lot of questions. Ask for referrals and Diagnostics. They have 2-3 thousands of patients on their panels and even see other patients as well so they can't keep up on everything going on in each of our lives.

It can be exhausting and discouraging but do your homework, be prepared, don't be intimated, make a list of questions.

I am going to send my neurologist my list of questions for my upcoming phone visit and tell her I thought she may like to know ahead of time to make for a more efficient, productive visit. And, if she needs a longer appointment time to keep her on schedule, then I am willing to reschedule if within a reasonable time.

As an MA, I tried to keep my docs on schedule and they appreciated it. The docs are mostly all great but the system fails a lot.

@specialty555, I will keep you in my thoughts and prayers. Keep us posted, we really do care! Warmest wishes, Sunnyflower 😊🙏. @johnbishop @jesfactsmon @lorirenee1