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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
@sunnyflower thank you so much!!! I am on my 3rd endocrinologist I saw her a week ago and she wanted all the reports and rest results. She called me on Friday and said I just have to confirm something cause it does not make sense to me...you were in the hospital they put you on treatment you felt great, was released and didn't fell well few days later they lower your dose then they take you off the medication?? I said yes! She said that makes no sense. I hope she will have an answer for me this week. I am just so frustrated. I am so sick and tired of feeling like this. I sleep for a few hours then I am up. I am so desperate. My levels have been so low then 1 time they were high but I just feel horrible. I wish you the best. Thanks for your info
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Oh my gracious! I hope they get this all figured for you STAT!! I 'm so sorry!
I have a lot of specialists over the years and also worked as a Medical Assistant for 20 years and coordinated a lot of patient care.
My take away is that we have to be our own advocate and fight like crazy to keep the doctors apprised of our status and ask a lot of questions. Ask for referrals and Diagnostics. They have 2-3 thousands of patients on their panels and even see other patients as well so they can't keep up on everything going on in each of our lives.
It can be exhausting and discouraging but do your homework, be prepared, don't be intimated, make a list of questions.
I am going to send my neurologist my list of questions for my upcoming phone visit and tell her I thought she may like to know ahead of time to make for a more efficient, productive visit. And, if she needs a longer appointment time to keep her on schedule, then I am willing to reschedule if within a reasonable time.
As an MA, I tried to keep my docs on schedule and they appreciated it. The docs are mostly all great but the system fails a lot.
@specialty555, I will keep you in my thoughts and prayers. Keep us posted, we really do care! Warmest wishes, Sunnyflower 😊🙏. @johnbishop @jesfactsmon @lorirenee1