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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@sunnyflower

Hello John and @specialty555, I am so sorry to hear about your journey @specialty555. I have adrenal insufficiency from long-term steroid use aka am steroid dependent. The treatment for a crisis is steroids! So I have injectable at home if I am unable to take my daily oral dose. It showed up as low cortisole when tested.

Do you have an Endocrinologist who can manage this for you? Very important!!!

The average healthy person's body make about the equivalent of 5mg. of prednisone daily.

Infections, stress can really cause a crisis.

I wish all the best for you and will keep you in my prayers!

Warmest wishes, Sunnyflower

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Replies to "Hello John and @specialty555, I am so sorry to hear about your journey @specialty555. I have..."

@sunnyflower thank you so much!!! I am on my 3rd endocrinologist I saw her a week ago and she wanted all the reports and rest results. She called me on Friday and said I just have to confirm something cause it does not make sense to me...you were in the hospital they put you on treatment you felt great, was released and didn't fell well few days later they lower your dose then they take you off the medication?? I said yes! She said that makes no sense. I hope she will have an answer for me this week. I am just so frustrated. I am so sick and tired of feeling like this. I sleep for a few hours then I am up. I am so desperate. My levels have been so low then 1 time they were high but I just feel horrible. I wish you the best. Thanks for your info