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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 days ago | Replies (6026)

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@helennicola

Thanks for posting that link John, I just learned a lot about SFN that I didn’t know! What I don’t get is why with all this available information hasn’t yet led to the discovery of a helpful drug. Helen

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Replies to "Thanks for posting that link John, I just learned a lot about SFN that I didn’t..."

Hi there @helennicola........that is a great question. Now, what would that helpful drug do? Would it be important to be able to keep the nerves from aging.....and then dying? Sort of like a specialized anti-aging medication? If that isn't possible what about replacement......there may be hope there. I just imagine the millions of nerves that someone with SFN must replace. Perhaps there are ways to take better care of our nerves if we could start at an earlier age.

Do you think there needs to be more funding options for scientific research? Are "we" with neuropathy of any kind, passed by because there is no measure of success......no guidelines for improvement and the patients always die anyway. Are there quality of life opportunities? Can we really turn pain into joy?

I have been told by clinicians "if they live long enough everyone will develop neuropathy".

I watch (with my heart) our members who run smack into a huge impassable wall when finding out a cure for their neuropathy just isn't going to be an option at this time.

Your posts often reflect my thinking. Thank you for sharing your thoughts. Is there anything else you think we should contemplate?

May you have peace and be content.
Chris