Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 5 days ago | Replies (6026)Comment receiving replies
@specialty555, I would like to add my welcome to Connect along with @erikas, @jesfactsmon and other members. Do your doctors think that the adrenal insufficiency may be related to your polyneuropathy symptoms? Here's a few articles with information about the conditions.
POEMS syndrome: a rare cause of adrenal insufficiency in a young male:
- https://edm.bioscientifica.com/view/journals/edm/2019/1/EDM19-0010.xml
POEMS: An expertise in the rare leads to a rare opportunity: https://connect.mayoclinic.org/page/hematology/newsfeed-post/poems-an-expertise-in-the-rare-leads-to-a-rare-opportunity/
Replies to "@specialty555, I would like to add my welcome to Connect along with @erikas, @jesfactsmon and other..."
Connect
Hello John and @specialty555, I am so sorry to hear about your journey @specialty555. I have adrenal insufficiency from long-term steroid use aka am steroid dependent. The treatment for a crisis is steroids! So I have injectable at home if I am unable to take my daily oral dose. It showed up as low cortisole when tested.
Do you have an Endocrinologist who can manage this for you? Very important!!!
The average healthy person's body make about the equivalent of 5mg. of prednisone daily.
Infections, stress can really cause a crisis.
I wish all the best for you and will keep you in my prayers!
Warmest wishes, Sunnyflower