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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "@specialty555 Welcome to Mayo Clinic Connect. It sounds like you are looking for advice on how..."
Hello @specialty555 and a very warm welcome to Connect blog! I am confident you will find wonderful support, encouragement, information and inspiration here as all of us have n some capacity.
I am heavy-hearted to hear about your pain and journey and hope that it will help you to know that others here can relate to your experience unlike others who can not. That alone means the world to me, that for the first time ever I found people who were experiencing the same pain/suffering and experiences as myself. I had longed for someone in my life to really get it but until I joined this blog, there was no one.
Feel free to ask questions and don't worry if you get behind and aren't able to respond right away. We all understand that!
I have small fiber peripheral neuropathy (SFPN) pretty much from head to toe. I burn/sting terribly and have numbness all over as well. I also have some neurogenic organ dysfunction as well as diseases in most of my organs and body, and a few glands.
My pain, circumstances, pain and day to day living is often intolerable. What gets me through is my intimate relationship with God and His ever-presence, comfort and peace through Christ which surpasses human understanding.
I will be praying for the same for you and that you will have some relief!
Warmest wishes, Sunnyflower. 😊.
@lorirenee1.@jesfactsmon @maryv449. @johnbishop