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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 31 minutes ago | Replies (5992)Comment receiving replies
Thank you so much for responding. Yes I'm very sensitive to meds. My Dr wanted to start me at 300mg 3 times a day but I refused. So he agreed to start me slow. The 100mg makes me sleepy😔
But I'm about at the place where I'm ready to increase it. I have started having numbness in both large toes and my legs starts feeling weak usually starting after lunch.
I did have a nerve conduction test about 2 years ago and the Dr said no nerve damage.. the Dr was an ELDERLY woman who was nice but acted very confused. I'd really have considered asking for a 2nd opinion with another neurologist but I don't know what to do
Replies to "Thank you so much for responding. Yes I'm very sensitive to meds. My Dr wanted to..."
Hi Airpod, small fiber neuropathy is not detectable from nerve conduction testing, that is possibly why your doctor may have appeared confused; a skin punch biopsy can determine SFN. I also was negative on these tests (and all labs) My diagnosis was idiopathic SFN. Most people on this forum have not found any relief for numbness unfortunately so our goal has been to find pain relief. I wish you well in finding all the answers you need and some positive outcomes. Helen
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Hi- i am so sorry that you are suffering. I was on 300 mg 3 x day of gabapentin as I was diagnosed with reflex sympathetic dystrophy (crps) back in 2007. The pain has gotten so bad but dr thought the gabapengin was not working. they told me to go down to 1 x 300 mg- I saw no difference- then I stopped- no difference except not sleeping. I had an emg/eeg test done on both legs after not being able to walk for 4 days. I have poly neuropathy in both legs- right leg has very little response at all. Now it appears I may have adrenal insuffiency and just saw my 5th dr to hopefully get some help. Dr. Said you need to be very aware as to if the medication is working or not. God bless I hope they are helping you. Hugs and feel better.