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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6026)

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@avmcbellar

Hi Hank and Linda @jesfactsmon. I have been trying different experiments and have decided to make changes. First of all, with my headache, I break out 2 “ice tea cubes” in little water to sip on when I feel the headache coming on. The tea seems to stop it all together. I don’t wait anymore for the headache to become full blown.
I thought about the ALA and the burning in my stomach. I decided the benefits were not worth the misery of the burning because it would linger all day. The changes of lowering the dosage and taking the acetyl L Carnitine only allowed an occasional relief for a day. I did not experience any additonal energy with the acetyl L Carnitine so I stopped both. It has been 2 weeks now without the supplements and I feel better not having the burning in my stomach.
Additionally, yesterday I ended my eye exercises since the motion sickness had gotten worse. A lack of balance and increased motion sickness makes doing activities very difficult. I can tolerate less endurance. I still have strength in my arms and legs. I just need the motion sickness to go away so I can build on balance. I believe exercises or neuroplasticity will help. I see that I do better with practice. I believe the brain learns because I started out in a wheelchair and after practicing I am now ambulatory. It is not for everyone because it does takes time, repetition, and discipline. Stay well! Hope you are both doing good today. Toni

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Replies to "Hi Hank and Linda @jesfactsmon. I have been trying different experiments and have decided to make..."

@avmcbellar
Hey, this is good news Toni, I'm really glad you've gotten some benefit from the tea. Thanks for telling us. As you know it has helped Linda a lot. Interestingly she had a headache yesterday but it was a different kind of headache than usual. And nothing helped, not the tea, not the Clear Headache pills she takes sometimes. It was a bad one!

Sorry about the ALA effect. And not to worry too much, I don't think acetyl l carnitine helps everyone. It helps your mitochondria process fat for fuel. I find it has an effect for me that I can notice. But some people need boosts for certain things mitochondria-wise and some do not, or they might need something that performs a different function for the mitos. Linda takes a super Co Q10 (brand name Mito-q). She swears by its effect on her. I tried it and did not notice anything. So, since it's pretty expensive I stopped it and she is still doing it.

I must be forgetting what you said earlier about the eye exercises. I thought the eye exercises WERE the neuroplasticity exercises. So since you say you are stopping the eye exercises but the neuroplasticity exercises will still help, what are the neuroplasticity exercises exactly?