@klein505 @heavyphil
Oh yes dear Mrs. K and Phil 😔, "lets confuse PC patients with some more new ideas" lol. Lets now shorten ADT time which was for years pushed as necessary for extended period of time followed by warning of imminent demise if not followed and lets also now consider doing boutique zapping of only "glowing staff" since we do not wish to spend all RT power in one sweep , while for years alllll papers and research explicitly instructed that full pelvic floor with all nodes should be zapped even if NOTHING glows.
I guess in following 10 years there will be a new suggestion that we should do NOTHING since OS is the same for all no matter what. Just chill and sip some hemp oil and hope for the big meteor taking you out before PC does : (((.
BUT, this was urologist talking and Dr. K. is also urologist and that might be the connection. I know that RO will faint if I mention this approach ( and I will not) since he already made a plan for all pelvic floor and all nodes and in coordination with another RO who works with neuroendocrine patients (the most vulnerable group) and who knows what "high risk patient" is. *sigh
I mean, I can see why treating only nodes sounds attractive - it uses less Gys and also there is almost zero chance of SA (like proctitis and cystitis or blood count disorders) AND it might be all that was needed actually for long remission or even "cure" ( not my idea !!!), but , BUT ! I do not know - my head will explode soon, honestly. I have pain in my left shoulder and I told my family that under no circumstance they should try to revive me if I get a heart attack 😠!
@surftohealth88 You’re in that headspace where none of us should ever be: trying to keep pace - and understand! - all the nuances involved in treatment.
I finally had to let it go myself, trust my RO and put myself in his hands…a very difficult step for us control freaks! Never considered myself one, but the evidence is overwhelming🤔.
The RO experienced in neuroendocrine PCa sounds like the IDEAL doctor for your husband. He knows the enemy all too well!
Don’t get sucked in by the Dr Kwon acolytes - this is not the time for theoretical or ‘wishful thinking’ type of treatment. It’s the time to go all in and worry about the SE’s later - of which there will be few if hubby follows the damn protocols to the letter. Best,
Phil