Hello, Pam. What a treat to meet you. Yep. I just took my a.m. pills, including 14mg Prednisone, as low as I can get and still move, use my muscles and have less pain. At 13mg, I can not lift or move my feet. Glued to the floor. And all muscles scream in pain. My muscles refuse to respond to nerve directions! And, glucose spikes like crazy with each steroid pill. So, insulin throughout the day. Low glucose alarms at night, from the sensor I wear that sometimes malfunctions, falls off, or won't even start. They have recalled some, replaced defectives, and I love it generally, if I trust it. But, it has been quite difficult adjusting to the severity and multiple issues caused by this diabetic emergency a year ago caused by Oxympic and steroids!
I'm now on insulin daily. Keep my diabetes bag with me at all times! Thank you, Prednisone!
Diet coke is such a tiny thing in the scheme of this life! But, it improves my little quality of life, so I'm thankful. Helps resolve tummy issues of gas, nausea, Gives me a bit more energy in this extremely fatigued body. All good.
I'm virtually bedridden now, due to Oxympic attacking my system, my muscles, my autoimmune diseases, causing the muscles to stop listening to nerve instructions.
It's been quite a ride on a very scary roller-coaster, since May 2025 and the glucose ER visit. Hospital stay, rehab facility, paralyzation of my legs, high Prednisone, PT to learn to walk again, infections, sepsis 3x, 2 NH rehabs from hell,
Need help daily now at home to survive and not getting it.
Quality of life is a joke now! I exit. Function at a limited basis, but can get to potty, little fridge and drinks, Greek yogurt that he1¹lps my gut work when added to Probulin Extreme Support Probiotic, diet coke, 1 cup of coffee, 2 glasses of iced green tea, 3-4 bottles of spring water, and deli food.
So, there you go. And, of course, my 57 year old precious son, lawyer who was struck by VmCervical Dustonia st 35 years, bright, successful life wit bright future... life gone. 100%disability since. Worsening daily. Constant, screaming at times pain. Loss of mobility daily. Decades of fight to get help!!! Still fighting!
But, i'm running out of fight. So, how does he survive... anyway....
That's my life now. Struggling to succeed today with a modicum of acceptance, positivity???, little depression, lots of frustration and anger at life at times and determination to survive!
Blessings, Pam. Stay strong and see the joy. Elizabeth
@ess77
Hi Elizabeth, So sorry for all you and your son are going through. Don't give up the fight! I am currently on 14 of Pred daily, but I divide it in am and pm doses to help keep my asthma more steady during the day/night. Dupixent and my nebulizers help. Something that can help with the DM is that you keep yourself hydrated well (even though it really is difficult to get to the bathroom). The hydration (as long as it is not contraindicated with limiting fluids due to other things), is essential to help the insulin get to the cells to manage blood sugar. Saying watch diet, carbs is necessary - but people have to live with DM. I hate when people assume that it is all diet related - which it is not. There are so many factors. Hope you are wrapping your legs or using support hose - to prevent blood clots. They also give support to the legs as well (I do this everyday - though it is a pain, and gets very hot at times. Deli food is delicious (I love corned beef), but dangerous from the high sodium, which depletes the fluids you have and leads to retention. (I also have other health issues.) Keep up the fight - even though it is difficult. When I was very sick 2 years ago, I was permitted to work from home and have someone do my daily classes as I worked behind them from home. Grateful and blessed that I improved and was able to go back to work, and also have a wonderful husband/family who are very supportive and also works. It is not easy to manage chronic illness and still maintain life. Good luck to you and your son! Sending prayers and blessings. Pam