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so is it ok to take Orgovyx and Nubeqa at same time ?
Prostate Cancer | Last Active: Jun 6 8:33am | Replies (8)Comment receiving replies
@northoftheborder yes..I had Gleason 8 ( very small amt in prostate) + Gleason 7. 4 cores altogether and 8 benign+ 2 iliac nodes with small uptake. Rx Orgovyx+ erleada early but couldnt tolerate. So I stopped taking everything for a few weeks. Then started back with orgovyx and a few weeks later, oncologist added nubeqa. PSA went down to .05 in fist 6 weeks ( even while I stopped) then after I started IMRT, PSA dropped <.02- then at CHristmas it was <.01 and stayed there so far. Next PSA is in 2 weeks or so.
SO I assume I am doing something right on ADT doseage...( the erleada and orgovyx early on nearly killed me tho-could not tolerate)
Replies to "@northoftheborder yes..I had Gleason 8 ( very small amt in prostate) + Gleason 7. 4 cores..."
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@xahnegrey40 wrote "the erleada and orgovyx early on nearly killed me tho-could not tolerate"
I'm sorry to hear that. It's interesting how we all handle meds differently. I've been on that combo for nearly 5 years with nothing but the normal, manageable low-testosterone side-effects from the ADT.
On the other hand, a few weeks of a steroid in hospital in 2021 did a real number on me, as did a couple of days of opiod-based pain killers after 10+ hours of spinal surgery.
Most people tolerate those fine, but they made my life miserable (and gave me temporary steroid-induced diabetes, requiring insulin shots), so we had to stop both. I preferred the post-op pain over the opiod side-effects.