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DiscussionDescribe your recovery from lung NET surgery
Neuroendocrine Tumors (NETs) | Last Active: Jul 5 6:59am | Replies (102)Comment receiving replies
Replies to "@sbrown959 Wow. What was your official diagnosis?"
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@tomrennie slow growing neuroendocrine lung tumor 2.2cm removed, a year later nothing on dotate scan seen. With additional Hashimotos Disease, MDA 5 postive Dermomatomyositis, Sjogrens, and Reynauds. Before the cancer was removed there was also NXP2 showing in my tests, it is gone now. They would say thats rare might be a mistakr and then a different lab would pick it up and they would say we just dont know, there os very little known about it. While, I still struggle with intense pain in my legs and neck, it is better without the tumor. No one really knows what to do to treat it. Some days are very difficult others are better.