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Any non fracture members?

Osteoporosis & Bone Health | Last Active: Jul 7 11:52am | Replies (119)

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Hello Everyone. I am new to the OP diagnosis as well. Actually found osteopenia but close to the osteoporosis parameters in my routine DEXA. I must say it threw me for a mental loop as well. I have always been physically active (lived, worked and taught in the exercise world, a retired RN). After a complicated and still bothersome knee replacement 5 years ago which put a huge kibosh on my weight-bearing activities, I wasn’t surprised that the scan showed significant changes. Unfortunately I am facing a 3rd cervical neck surgery secondary to a hard fall (my balance is not good because I cannot engage my quad to lift and pivot well because of the knee). And, yes, I went to many series of PT, did my home programs, etc even aqua therapy. All thru this journey and thru numerous falls, I have never had a fracture. Because of my DEXA scores and upcoming cervical neck surgery, I started Tymlos 2days ago. I certainly don’t want hardware failure with this one…. I read on this forum many who have had experience with titrating the dose upwards gradually and opted to approach my dosage administration that way. I realize two days at a low dose is not a ‘real’ trial but at least I had no hypotension, headache or anaphylaxis! I thank everyone who has posted experiences here…

I am also concerned about weight gain. My smaller frame cannot handle the extra weight load. I already began this after the years of sedentary (for me) life a few pounds over what I should be and have not been at my ideal weight since I turned 50. I am now 73. But looking on the positive side, I keep thinking that God gave me this extra padding to help protect against fractures. I am not, however, relishing looking in the mirror and seeing my profile as wide as it is tall! Hopefully, I can keep my sense of humor and continue to look on the positive side! Blessings to all of you and thank you for ‘listening’…

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Replies to "Hello Everyone. I am new to the OP diagnosis as well. Actually found osteopenia but close..."

@dorob I'm told that on Tymlos even thos the P1NP may increase dramatically, that you do not begin to actually form meaningful bone until 8 or 9 months. If you are planning cervical neck surgery and are concerned about the hardware, you will possibly want to time it at a favorable period after beginning Tymlos to help ensure your bones will hold the screws and hardware. May I ask if this is a C1-C2 odontoid fracture that is being stabilized? I ask because I fractured those discs and developed a chronic but supposedly stable nonunion state. I think it has become unstable and am contemplating cervical neck surgery. Wondered if you were facing the same procedure?