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Profile picture for ellierwin @ellierwin

Epilepsy is something nobody knows much about. It’s just part of me. Part of my head, part of what’s happening in there. Sometimes something in my brain triggers it off”.

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Replies to "Epilepsy is something nobody knows much about. It’s just part of me. Part of my head,..."

@ellierwin

Not enough global effort had been put into the research of this seemingly rather common global condition. Of course, developing a drug or researching any medical cost money. In fact, lots of money and resources which may need global organizations like WHO’s involvements. It’s time for individual countries to also not let the talents which so many of us can contribute to their organizations go wasted when we are equally capable in many ways. Just that, how can we? And how can they?

Hi @ellierwin
Thank you for sharing this!
The way you expressed yourself in your post resonates with me — epilepsy is a part of us. But knowing that and truly making peace with it are two very different things — and the distance between them can be wider than we expect. Truly accepting this part of us is no small achievement and can be deeply liberating. In my own experience, it's one of the most powerful steps we can take in our epilepsy journey to find our way back to a life of joy.
That kind of acceptance, as simple as it sounds, can take time and inner work to arrive at — as it did for me. In my own journey, working with my neuropsychologist has been fundamental in helping me move toward that.
@ellierwin, would you mind sharing a little more about what has been helping you along the way in this respect?
And for all of us in this group — did that way of seeing it come naturally to you, or was it something you had to work on? What has helped you make peace with your epilepsy and truly accept this condition?
Chris