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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
My peripheral neuropathy was probably caused by chemo drug like Taxol
I’ve finished chemo therapy a year ago Sept 2019 but experience numbness, leg and feet fatigue
NO pain so elect to take no meds like Gabapentin
I’m doing many things like vitamins , exercise and healthy foods . I know some nerve damage dirs not
Regenerate or reverse but I understand that some never will regenerate .
If so does anyone one Have a psibld time frame ?
Not sure if severity but I don’t have pain and can sleep
The fatigue and numbness is there and want to know how to improve & does it improve as it’s been a year after the chemo /radiation toxins
All input is appreciated Norma Zick
Replies to "My peripheral neuropathy was probably caused by chemo drug like Taxol I’ve finished chemo therapy a..."
@normazick Norma, another thing you might consider is modifying your lifestyle, including the 3 biggies, diet, exercise and sleep. Since you still have hope that your neuropathy could still subside and maybe disappear altogether, one thing to know is that lifestyle changes might help, such as reducing sugar intake as much s possible (including label reading to see how much is hidden in products). Try to keep up at least moderate exercise if possible, walking is great or swimming. You may also want to research some supplements, such as B vitamins (but avoid B6 if possible, bad for some with PN). Also, R Lipoic Acid and Acetyl L Carnitine are ones my wife takes. There is a ton of stuff to learn about and if I were you I would try to build a regimen asap to get on top of your PN. Its all about research, if you can do it. Staying with this forum will help you a lot! Hank
Hi Norma @normazick, Welcome to Mayo Clinic Connect. There is another discussion you may be interested in joining in to learn what other members have shared about Chemo-related Neuropathy -- https://connect.mayoclinic.org/discussion/1st-time-at-mayo-for-neuropathy/.
You may also find some helpful information in the following article - What are the best remedies for neuropathy from chemo?: https://www.medicalnewstoday.com/articles/323481 Here's an excerpt from the article (link in the article to the 2014 study):
"Outlook and takeaway - Neuropathy can be extremely painful, but it is not usually permanent. For most people, symptoms go away after they stop chemotherapy. Sometimes it takes a few months for symptoms to fade. A 2014 study found that 30 percent of people still had symptoms of CIPN 6 months or longer after stopping chemotherapy. In rare instances, neuropathy can be permanent, but there is no way to predict whether this will be the case. Although CIPN can be debilitating, it is important to keep in mind that symptoms almost always improve."
It's a good sign that you don't have pain and can sleep. Has your doctor suggested any treatments or therapy to help with the fatigue and numbness?
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@normazick Hi Norma, welcome to Connect. My wife got neuropathy in her feet in 2014 as a result of chemo also. She hoped it would improve but it actually has gotten progressively worse, especially the last year and a half. Yours is recent enough (1 year) that you might get better. It's very good that you do not experience pain. All symptoms, including numbness, are a drag, but I believe severe pain is the least preferable. @johnbishop started a discussion recently for people who have numbness w.o. pain. Here is the link:
https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/
Please stay abresat of the neuropathy discussions here, they are immeasurably helpful, and post often, everyone here is uber kind as well as interested in YOU.
Best to you and I hope you get better. Hank