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Chris Gautier, Volunteer Mentor avatar

Any phrase, idea that helped you navigate life with epilepsy?

Epilepsy & Seizures | Last Active: 1 day ago | Replies (22)
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Profile picture for Jake @jakedduck1

@santosha
My parents, family and friends tried for a long time to make me understand that epilepsy isn't as bad as I was making it out to be. I was so angry and resentful that I would never realize my dream of becoming a pilot or even driving. In high school I was told I could play the piano at chapel in my junior year but I was asked to leave school the year before because of relentless seizures. My music was very important to me. The loss of my ability to play was devastating, it's been the worst part of my journey. My friends and I used to say "It is what it is" and accept whatever and move on but it took 2 years until I could actually hear, say, and act on those words and truely move on.
Take care Chris,
Jake

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Chris Gautier, Volunteer Mentor | @santosha | 1 day ago

@jakedduck1
Hi Jake!
Thank you for sharing something so personal: the pilot dream, leaving school, and above all, the loss of your ability to dedicate yourself to music. Those were real and profound losses. I well imagine the anger and resentment you went through; they make complete sense.
What your story so beautifully shows is that outer support can only carry us as far as we are ready to let it in — and that the inner journey of truly accepting "it is what it is" is still ours to walk.
What helped you finally turn that corner and carry those words from your head into your heart?
Chris

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