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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@jakedduck1
Hi Jake,
Thank you so much for sharing here in this discussion!
What stands out most to me in your story is that your acceptance of epilepsy did not begin from inside you — it was reflected back to you by the people around you. Your friends and family essentially modeled acceptance for you before you could fully own it yourself. That is a remarkable gift!
My battle was inward, mostly related to the acceptance of the condition itself, because of the changes it brought to my life — especially those related to work. I felt like a door had closed and I was stuck in front of it, trying to reopen it. But thankfully, I have been able to turn that page.
A phrase that has stayed with me since I joined this group — and whenever it comes to mind, your name comes with it, Jake — is something like: you have epilepsy, but epilepsy does not have you. It has helped me so much in this process of accepting my epilepsy, Jake — thank you from the bottom of my heart!
And thank you also for your kind words about my posts, Jake — they mean a great deal to me.
Chris

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Replies to "@jakedduck1 Hi Jake, Thank you so much for sharing here in this discussion! What stands out..."

@santosha
My parents, family and friends tried for a long time to make me understand that epilepsy isn't as bad as I was making it out to be. I was so angry and resentful that I would never realize my dream of becoming a pilot or even driving. In high school I was told I could play the piano at chapel in my junior year but I was asked to leave school the year before because of relentless seizures. My music was very important to me. The loss of my ability to play was devastating, it's been the worst part of my journey. My friends and I used to say "It is what it is" and accept whatever and move on but it took 2 years until I could actually hear, say, and act on those words and truely move on.
Take care Chris,
Jake