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DiscussionAny phrase, idea that helped you navigate life with epilepsy?
Epilepsy & Seizures | Last Active: 1 day ago | Replies (22)Comment receiving replies
Replies to "@jakedduck1 Hi Jake, Thank you so much for sharing here in this discussion! What stands out..."
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@santosha
My parents, family and friends tried for a long time to make me understand that epilepsy isn't as bad as I was making it out to be. I was so angry and resentful that I would never realize my dream of becoming a pilot or even driving. In high school I was told I could play the piano at chapel in my junior year but I was asked to leave school the year before because of relentless seizures. My music was very important to me. The loss of my ability to play was devastating, it's been the worst part of my journey. My friends and I used to say "It is what it is" and accept whatever and move on but it took 2 years until I could actually hear, say, and act on those words and truely move on.
Take care Chris,
Jake