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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 3 days ago | Replies (7826)Comment receiving replies
@davidyapp Hi David my name is Lori. I had an ependymoma removed 21 years ago at L1/L2. It took me years to become mobile without an aids. It took moving to a dry warm climate. The pool is what really helped me. The doctors I had at the time said there was nothing wrong with me and it was all in my head. How did they find you tumor?
Replies to "@davidyapp Hi David my name is Lori. I had an ependymoma removed 21 years ago at..."
Let's face it ... most doctors have experience with spinal cord tumors; I was told at one time ... our tumors were 0.005% of total (really small).
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@ljcarr222
My next door neighbor was a orthopedic surgeon in Lincoln NE; he requested for me to get an MRI (he wasn't my doctor but he was always curious of why I limped on my left side of my body); he ordered and MRI for me & we found a large tumor at the top of my spinal cord (inside) C6/C7; he told me that I need to go to one of the best spinal cord tumor hospitals (went to MD Anderson in Houston). My doctor was Robert Grossman & he told me it wasn't an emergency but he told my wife and I that my spinal cord could collapse if I didn't have the operation and become parapolygic. I was pretty lucky as my next door neighbor wasn't part of my medical network & he pushed for the MRI. At the time, I was complaining of lower back pain which had nothing to do with my ependymoma. Sometimes we get really lucky (early detection is extremely helpful)