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@midwestjulyguy - I would say I had some similarities, but that isn’t to say I saw things as negative on their part.

A couple of the nurses did give me generalized (and sometimes contradictory) recommendations on aftercare with respect to incontinence, but nothing written down, just passed along face-to-face. The more I asked, the more I got, and I think sometimes we all expect the staff to relay everything under the sun with respect to mitigating side effects, but I don’t think that’s always practical.

I go to a COE, and one thing they did was simply refer me to their YT channel, with many videos on kegels, nutrition, exercise, ED, etc. I’m sure they felt that was enough (although they did put me in touch with a local PFPT for PT closer to home).

The pathology after surgery…I waited three weeks (and a few days) for the report to post to my portal, and another few days to have my appointment with the doc to go over it. I know everyone is anxious to learn everything about their cancer as soon as possible, but I didn’t think that was unreasonable at all. That’s what I mean by similar but not negative.

I’m not a details person, so when the surgeon went over my pathology, he didn’t break it down a whole lot, and that was fine with me. He just gave me the highlights: negative margins, negative lymph nodes, negative nerves, follow up with PSA every three months for two years.

I was fine with that level of specificity, and now I go back every so often when I read or learn about something here and peruse my report at my speed. If he’d have told me everything all at once…in one ear and out the other with me. I wouldn’t have retained 90% of it.

Good luck on your pathology report and your follow-up!

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@turtbean

The doctor is setting the dates the pathology is going to be available.... it came in today on My Patient Chart. Left a message for him to call me because from what I can tell they didn't get all of it! Now 8:30 pm... hope he calls tomorrow. He initially told me it would be ready in 5 days. Guess not, it took 13!