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Hello! My name is Carol, I live in Alberta, Canada where options for my treatment have (unfortunately) been very limited and ( even more unfortunately) I honestly think that my disease has long ago already progressed too far to allow me to benefit from anything that’s on offer here. I continue to lose weight steadily, no matter what I try to eat & my cancer pain (despite using opiates) is fast getting completely unbearable. I’ve finally been referred for an assessment at a pain clinic in my city, but I don’t know whether I will even be accepted there as a patient. I was diagnosed with stage 4 NET, primary tumor in pancreas but there’s suspicion that I might’ve had it elsewhere too, as my liver has always been “fully involved” which many more lesions of a higher grade than those in my pancreas. I also have NETs in my small bowel & in my skull. Please let me know what sort of information you are specifically interested in receiving, as I don’t want to burden you with extraneous stuff that you might already know all about. I wish you the best of luck with your situation. Best Regards, Carol

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Replies to "Hello! My name is Carol, I live in Alberta, Canada where options for my treatment have..."

@kaiulani sorry to hear Carol can I ask what city you are in I’m in Edmonton I am going for a Gallium 68 scan this morning I have a mass in retroperneal area that was not reported back in Feb 2025 on a ct scan a radiologist just found it on my 6 month follow up behind pancreas I had a net removed from my lung in Nov.