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Controlling my own journey

Breast Cancer | Last Active: Jun 15 11:35am | Replies (21)

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I have stage four metastatic breast cancer as well, I am still on treatment for now but at my recent appointment I mentioned considering stopping treatment. It's been over 3 years now on it and while it's "working" to keep my cancer at bay, I have no quality of life being on the treatment. Of course my family, friends, etc all don't understand that and want me to stay on it. They don't have to live with what I live with every single day, they just see me as alive and of course don't want to let go. For me though, I haven't felt "alive" since I began treatment. I actually regret ever starting treatment because I feel like it just altered me in only bad ways and I feel lost, like I don't even know who I am anymore. It's not a good way to feel and I am left just wondering, if I stop treatment right now... would I ever be able to even be "me" again before the cancer takes back over? How long would it take? Or is it all just too late for that anyway? No one can answer these questions and it's horrible living with all of this and feeling so alone with it all. My family just shut down and don't want to listen when I talk about stopping and ending this horrible journey. I wish they could support me and I wish they had supported me when I was first diagnosed and I said I didn't want treatment. Instead they pushed and pushed for it until I gave in.

I am sorry that you are going through this and facing this decision and the consequences. I hope you will hear from more people who have already made this decision. Hugs to you, I pray you will find good support and palliative care that puts your needs first.

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Replies to "I have stage four metastatic breast cancer as well, I am still on treatment for now..."

Have you ever heard of Bio-Med research. If my cancer comes back I am going to camp at their door.

@coco46

I’m so sorry to hear this, my family thank goodness doesn’t push me I guess they know they are not the boss of me! Remember you are in control of your life not them, sounds harsh but its the truth. They probably just don’t want to lose you and they don’t know what to do for you and they’re scared too. I can’t imagine feeling that way for 3 years, I knew by month two I wasn’t going to continue with treatment my body showed me I wasn’t up for it and I listened but I did give it a try. As of right now I am off all meds only a couple of residual effects but they are slowly getting out of my system. Even if I get a few months or a couple of years I know I would rather be living my life and not going from bed to couch to chair. I wish you the best remember you are the boss of you!