← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@rebeccaheard
This sounds like me! I love to walk with my small dogs. 2-3 miles depending on what is going on. When slowly noticed more and more pain. From standing at the sink, cooking. The pain was horrible that I would sit for a bit. Then it was hard to get up off the couch, out of bed.
I have double vision, I had a recent problem with my jaw joint! Brushing my teeth my joint popped out and back in‼️painful and I couldn’t open my mouth properly for a couple days.
My GP put me on prednisone. I couldn’t believe how much better I felt . Started walking again. Even on prednisone I have limits. The lowest I’ve gotten down on prednisone is 7 mg where I’m holding.
I finally have a Rheumatologist appointment July 17‼️
Maybe I will gain insight on PMR
This site has been a great resource

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Replies to "@rebeccaheard This sounds like me! I love to walk with my small dogs. 2-3 miles depending..."

@shjort
Yes! I'm also looking forward to my rheumatologist to learn about other alternatives. My primary wants me to eventually taper down to 1mg but I can't see that happening if I'm barely surviving on the 8mg. I wish you luck!