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@smithki 3 lower lumbar back surgeries with rods & pins being the last one on 5/27/25. The pain that I went to the ortho about originally was for an excruciating "cold" pain & numbness in my right outer thigh, from my hip to my knee that had been going on & intensifying for approximately 2 years. The ortho was convinced that the nerve was compressed & PLIF surgery would fix it. Now a year later & absolutely no relief in my hip, but added numbness in the pad of my foot, my ortho surgeon has said there is nothing else he can do & was sent to a Pain Specialist. I feel like I am being "pushed" to do a trial with an Abbott SCS.

I have asked my ortho surgeon on numerous occasions to do a mri to see what is wrong. They do an x-ray of my spine every time I go that shows the surgery hardware is doing exactly what it was intended to do. BUT!!! It has YET to fix my pain!

I went to the pain specialist yesterday, & he just kept saying that this is what will help. That he has talked with my surgeon & this is what he is recommending. . . I "argued" with the specialist for probably 30 minutes (lol!), but I want to KNOW how this is going to help the pain that no one seems to care about! He DID say that he would order an mri if I just REALLY wanted one, but he was confident that it wouldn't show anything. (and I began to worry that if I insisted on an mri that they would word it so that my insurance wouldn't pay for it!) Plus they say that regardless of what is causing my pain, the SCS will help. So, I finally agreed that I would at least do the psych evaluation & talk to the Abbott rep.

I got home & started researching the Abbott device & found that there are several lawsuits against these companies INCLUDING Abbott models Proclaim & Eterna, alleging that the company "failed to warn patients about device malfunctions that cause severe electric shocks, burns, nerve damage, and lead migration that forced victims to undergo painful revision or removal surgeries." (Drugwatch.com) THEN goes on to cite "High-profile cases - such as Furia v. Abbott Laboratories and Tuttle v. Abbott - allege that defective Eterna and Proclaim models caused severe complications like bladder incontinence, paralysis, and excruciating pain."

So I asked the rep about lawsuits, & at first she said that it was ONLY OTHER companies, not Abbott. So, I sent her a link to the article. . . HOURS later (& she had been responding within a couple of minutes!) she replies with "With anything in healthcare, I'm not surprised to see individual lawsuits, but there have been no class action lawsuits brought to my attention regarding these generators."

So, I'm even MORE skeptical!!! Any help would be appreciated!

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Replies to "@smithki 3 lower lumbar back surgeries with rods & pins being the last one on 5/27/25...."

@stevenla313 honest I had the Abbott put in originally they had it set too high and it burned burn me in my pelvic area,After seeing a urologist who told me it was the Abbott unit causing it. So meeting with the rep she discovered they set it way high after the implant. I now have it turned down very low and to tell you the truth I am not sure it has helped or my last surgery after much healing was successful.

@stevenla313

I had an MIS PLIF in May of 2025, too. Like you, my pain has continued. Doctor decided it was coming from my SI joints so those were fused in November of 2025 and March of 2026. I was diagnosed with lymphedema in both legs in August of 2026 (the swelling and pain began 10 days post op). A new internist believes it is RSD! I had an SI joint surgery post op appointment (via telehealth) a week ago. The PA was surprised I’m still having burning pain in my buttocks running to the thighs and feet. I’ve asked for a new MRI and CT scan and have heard crickets!

A SCS trial was done in February. It caused the most severe pain I have ever had in my life! They took it out on day3 (on a Friday) and then I developed a migraine Friday night! They couldn’t do a blood patch until Monday!! It was a horrible trial.

All this to say that I am still being told the only option I have is to go with a SCS, in this case the Boston Scientific Wavewriter (not rechargeable one). I’m a 4’11”, 98 lb 62 year old female who is the size of a 10 year old child. I think the gauge of wire is what caused my severe pain in the trial. I was told that’s the only size they use. I’m scared to death of them now! I can’t believe this is the only treatment, other than narcotics! I’ve lost my job. I’ve lost my social life. I’ve lost my intimacy with my husband of 42 years, and I’ve lost my independence- I cannot drive. I cannot clean my house, do yard work or gardening. Worse yet, I can no longer drive my 2000 Harley Davidson Fatboy!

My prayers go out to all of us who are on the struggle bus, as well as those who have found pain relief. Any advice is appreciated.