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DiscussionAnyone had an Abbott SCS put in? BurstDR strength setting?
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I had an MIS PLIF in May of 2025, too. Like you, my pain has continued. Doctor decided it was coming from my SI joints so those were fused in November of 2025 and March of 2026. I was diagnosed with lymphedema in both legs in August of 2026 (the swelling and pain began 10 days post op). A new internist believes it is RSD! I had an SI joint surgery post op appointment (via telehealth) a week ago. The PA was surprised I’m still having burning pain in my buttocks running to the thighs and feet. I’ve asked for a new MRI and CT scan and have heard crickets!
A SCS trial was done in February. It caused the most severe pain I have ever had in my life! They took it out on day3 (on a Friday) and then I developed a migraine Friday night! They couldn’t do a blood patch until Monday!! It was a horrible trial.
All this to say that I am still being told the only option I have is to go with a SCS, in this case the Boston Scientific Wavewriter (not rechargeable one). I’m a 4’11”, 98 lb 62 year old female who is the size of a 10 year old child. I think the gauge of wire is what caused my severe pain in the trial. I was told that’s the only size they use. I’m scared to death of them now! I can’t believe this is the only treatment, other than narcotics! I’ve lost my job. I’ve lost my social life. I’ve lost my intimacy with my husband of 42 years, and I’ve lost my independence- I cannot drive. I cannot clean my house, do yard work or gardening. Worse yet, I can no longer drive my 2000 Harley Davidson Fatboy!
My prayers go out to all of us who are on the struggle bus, as well as those who have found pain relief. Any advice is appreciated.
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@stevenla313 honest I had the Abbott put in originally they had it set too high and it burned burn me in my pelvic area,After seeing a urologist who told me it was the Abbott unit causing it. So meeting with the rep she discovered they set it way high after the implant. I now have it turned down very low and to tell you the truth I am not sure it has helped or my last surgery after much healing was successful.