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@brianjarvis

I received absolutely no warning of side effects from Lupron, nor did I get any guidance when side effects started. I was totally on my own with my best sources being this web site and friends suffering from the same side effects.

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Replies to "@brianjarvis I received absolutely no warning of side effects from Lupron, nor did I get any..."

@pesquallie A real FAILURE of the medical community. And the so called Centers of Excellence don’t do well with this either. I personally think that it is a “What they don’t know won’t hurt them” mentality. But ADT can be managed in ways that are far less impactful than just giving a patient a 6 month shot and kicking them out the door

@pesquallie That’s unfortunate.

When I was diagnosed with prostate cancer, my first comments to my urologist were, “I don’t know anything about prostate cancer so, I’ve got a zillion questions to ask before you cut anything out of me, or bombard me with radiation, or inject toxic chemicals into me……” From that point on, everything that they were going to do to me was first fully explained; after understanding it, I either agreed to it or it didn’t happen.

As it turned out, I selected my own medical team - a radiation oncologist at one hospital and a medical oncologist at another hospital. We worked together to get answers to the questions that I needed to ask. But, if I hadn’t taken charge and pushed it myself (and done my own research), I wouldn’t have learned half of what I did.

Your issues are more than likely related to the ADT and not the radiation; are you still on ADT?