← Return to FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

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@littlecat

Hello little cat, i wish all the best for your recovery and taking these decisions is very hard sometimes. i was diagnosed with FS-DFSP on the sclap, my all margin were clear from 15MM upto 30MM. except for the deep margin it was clear 3MM. but my plastic surgeon took extra precautionary that he removed the extra layer before skull bone and that too came the negative, pluse my tumor didn't involved the muscle aswel.

i took 4 opinions of oncologist which 3 of them suggested not to do radiation and only one of them suggested as precautionary, for me i never wanted to take the radiation because my concern was i didnt wanted to expose my body to it , Second going for radiation when something is not even there. third the my surgeon did took the extra precaution and oncologist suggested not needed.

i would suggest go for your gut feeling. and keep doing MRI or Ct scan every 6 months.

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Replies to "@littlecat Hello little cat, i wish all the best for your recovery and taking these decisions..."

Hi @humbl3reh192

Thank you for your sharing. You make me think more positive. May I know did you have 2nd surgery to get more deep clear margin? How long did you have your surgery and everything alright just keep monitor? I don't want to have radiation as well if there is nothing. I want to have more share who has close deep margin experience. Although I still feel depress but I think I need to change my mind and go back to normal life.