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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)Comment receiving replies
@david33
Laura, I am reading your posts since February of this year. You mention you were hit in the head with a block of wood around 2017 or so. You also say you do not remember much since 2012. What happened in 2012?
It sounds like you have seen a lot of doctors and have been prescribed a fair bit of medicine (drugs). Plus it sounds like the doctors have been in some cases less than professional in their advice to you and in some cases rude. Not sure where you are (you do mention Pittsburgh at one point) but it doesn't sound like they have great docs wherever you are going. You describe having brain fog at times, and losing track of reality as well.
You have had injuries, multiple surgeries, multiple prescriptions. It's a lot. Maybe someone else will come up with some good ideas for you. Meanwhile, here is my suggestion for now:
You said you are big on journal writing. I hope you have a record of all that you have been through since your troubles started. I would try to organize a detailed list of all of your health issues CHRONOLOGICALLY. List all of your medical visits, what happened at each one and what drugs you were prescribed, also who your doctors were and each of their specialities. Put down how long you took each drug and when you were on each one. Do it from the first to the last (chronologically) because it will help to make better sense of everything.
I would NOT include your emotional/relationship issues that you have described. Just the medically oriented info. That way your issues will be clearer for the GOOD doctor you are going to see, hopefully soon. I am sorry for all that has happened to you, it is a very sad story. I do hope someone will help you. All that we on Mayo Connect can do is try to make suggestions that might help.
Keep posting, you are doing great at that! Hank
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HankB @jesfactsmon
Hello Hank,
In 2012, was the trailer fire. I lost 7 dogs and 6 cats in there. I can honestly say now that my mind is stuck on the fact that it was arsoned and the reason I believe this is because I lived in this trailer for 2 years and when my family would leave we would turn the main breaker off. April 19th 2012 I finally got my bill of sell and made plans to move the trailer into a country area, on April 21st 2012 we left to go and get some flowers and we decided to give our neighbor one of our babies for a surprise, (friend of ours at the time) without him knowing. When we we heading home he called my husband and asked 3 times if we had our daughter which he answered "yes".
When I was told about the fire, I kept screaming "breck in back door, bust in the glass" but he said it too late. A 13 year old female seen it all and told me she tried to save them while others just watched. When I told the person who was supposed to get a pup and he told me "if I had known that, the fire would never have happened."
My mind shut down after that, I had to go through therapy and put on meds to help me to cope of the loss of my fur babies.
Before the accident of getting hit in the head with a log, I also hit my own head with the claw part of a hammer which the doctors claim I did it on purpose. My husband told the doctor he could understand if I hit my head with the hammer twice but 6 times without me knowing I was really doing it?
This is why I'm scared of having brain fog, or clouds, I can't think or communicate when this happens and my husband makes sure that I'm in a safe place and keeps a close I on me so that I don't do harm to myself or others when this happens.
I was told I have chronic issues to where I make myself have medical problems and that I'm looking for attention.
Thank you for the idea about writing a journal on this, and I will start right away, maybe I can pin point where the fog, or cloud started and get to the bottom of what is going on.
SORRY for writing a story.