(I didn’t have that experience.)
Regarding your current situation, it’s helpful for you to know what specific factors might be causing your issues and give you an idea of how to help reverse this unfortunate side effect?
> Are you still on ADT?
> when were your radiation treatments?
> What type and how much radiation did you get?
> Did they radiate your penile bulb?
> What was your full bladder/empty bowel routine?
> Did you use a rectal spacer?
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A doctor will tell you everything he/she thinks you need to know about having successful prostate cancer treatments, but not everything you’d want to know (especially if it involves quality of life). Beyond that, it’s up to the patient to ask the questions. This is about self-advocacy and shared decision-making.
The side-effects of both radiation treatments and ADT (when compared to surgery) are well-known. (In fact, those differences comparing radiation+ADT to surgery - both from what we had discussed and from what I had read - are what led me to choose radiation+ADT.)
My medical oncologist informed me well in advance of my first Eligard injection of the likely & potential side-effects of ADT, and recommended that I engage in robust resistance-training exercises to minimize/avoid them. She also advised that since ADT would cause low-libido, to continue “doing it anyway” even though I would feel like doing it, and that it is sometimes a “use it or lose it” scenario.
@brianjarvis
I received absolutely no warning of side effects from Lupron, nor did I get any guidance when side effects started. I was totally on my own with my best sources being this web site and friends suffering from the same side effects.