Hello, I'm sorry to hear what you're going through. Let me share my wife's experience. She had a neuroendocrine tumor of the pancreas, secreting ACTH. In addition to the tumor itself, this caused her to develop ectopic Cushing's syndrome. The tumor was 2 cm in size, located in the head of the pancreas, and a biopsy was performed using a fine-needle aspiration endoscopy. The result was a grade 2 neuroendocrine tumor.

Since it was a functioning tumor, and the Cushing's syndrome was significantly impacting her quality of life, after a meeting between endocrinologists and a pancreatic surgeon, it was decided that the best course of action was to remove the tumor.

Four months after the diagnosis, in March 2024, the tumor was enucleated, and thankfully, everything went well. Today, she has recovered from Cushing's and has checkups every six months. Fortunately, she remains stable so far, with no signs of disease. She did not require chemotherapy or radiation therapy.

Regarding your question, I think it's important to have a biopsy to determine the type of tumor, its grade, and other relevant factors.

Well, I've shared my experience with you, and especially my wife's. I wish you the best of luck on this journey.

Sorry for my English, i used google translator