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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi Hank,
I know exactly how this feels. I have pain that keeps me awake, and when I won't go to bed until my body gets exhausted that's when I will climb into bed and pass out, when it's time to get up (it feels like I'm being pulled from a deep sleep) I don't feel or move, and I fall back to sleep again (when I think of the time of the day it might be, I pull or have someone to pull me into a sitting position), I pray that I don't wake up, but once I'm awake I thank God that I can be with my family no matter how much pain I'm in. I'm thankful for my family for helping me when I feel low about myself.
Replies to "Hi Hank, I know exactly how this feels. I have pain that keeps me awake, and..."
@david33
Laura, I am reading your posts since February of this year. You mention you were hit in the head with a block of wood around 2017 or so. You also say you do not remember much since 2012. What happened in 2012?
It sounds like you have seen a lot of doctors and have been prescribed a fair bit of medicine (drugs). Plus it sounds like the doctors have been in some cases less than professional in their advice to you and in some cases rude. Not sure where you are (you do mention Pittsburgh at one point) but it doesn't sound like they have great docs wherever you are going. You describe having brain fog at times, and losing track of reality as well.
You have had injuries, multiple surgeries, multiple prescriptions. It's a lot. Maybe someone else will come up with some good ideas for you. Meanwhile, here is my suggestion for now:
You said you are big on journal writing. I hope you have a record of all that you have been through since your troubles started. I would try to organize a detailed list of all of your health issues CHRONOLOGICALLY. List all of your medical visits, what happened at each one and what drugs you were prescribed, also who your doctors were and each of their specialities. Put down how long you took each drug and when you were on each one. Do it from the first to the last (chronologically) because it will help to make better sense of everything.
I would NOT include your emotional/relationship issues that you have described. Just the medically oriented info. That way your issues will be clearer for the GOOD doctor you are going to see, hopefully soon. I am sorry for all that has happened to you, it is a very sad story. I do hope someone will help you. All that we on Mayo Connect can do is try to make suggestions that might help.
Keep posting, you are doing great at that! Hank
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We are here for you Laura. One day at a time.