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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 15 hours ago | Replies (6019)

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@johnbishop

Hi Colleen! @colleenyoung. I'm hoping members posting here in the Living with Neuropathy discussion that really do not have neuropathy or that may have other related chronic pain symptoms will see your post and be able to connect with other members that share their condition and symptoms in a better suited discussion for them so they can exchange experiences and learn from each other.

And for those folks that love to talk (including me! - Hey, how about those Chicago Cubs...oh, forgot, it's football season 😂) there is another one of my favorite groups to check out the existing discussions, find a discussion or post a new discussion and talk away...

Just Want to Talk Group -- https://connect.mayoclinic.org/group/other/tab/discussions/

Happy Thursday!!

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Replies to "Hi Colleen! @colleenyoung. I'm hoping members posting here in the Living with Neuropathy discussion that really..."

@johnbishop. Hi Guys. Colleen, I don't have to type your Mayo name for you to see my like and reply bc I 'm replying to your post correct? There have been soooooo many posts I don't know I was supposed to type in everyone's Mayo names who were included in the initial post and appear at the very top of the post I am replying to if I want them to see it and also if I include a member 's name in my reply I should type their Mayo name somewhere in my reply as well. It's difficult for me to do bc I can only remember about 3 letters of a name at a time so have to keep scrolling up and down several times to type out each person's name. It's also hard on my eyes. I 'm just learning. IA member has helped me learn but I' m also asking a few if I 'm understanding correctly bc I have been having to keep asking that generous person questions and he has been so patient with me and generous with his time.

Jonn and Colleen, I MUST join the bones/joints/muscle group. I currently receive 30 to I believe 40ish emails daily. I yhink. How could I handle more and, how would I keep the group emails separated from each other?

Feeling overwhelmed. Largely bc of pain, meds and scary new diagnoses that don't stop coming, and serious decisions about treatments. Also facing new invasive (painful) diagnostic and treatment procedures and 2 surgeries (4th back for "severe" spinal canal stenosis and brachisl artery stenosis). Also my recent bone density scan revealed my already severe osteoporosis (have spontaneously incurred 3 pelvic, one rib fractures). My Endocrinologists have been trying to get me to take Bisphosphenates for it but they can have severe, painful and serious side-effects such as, believe it or not, fractures in femur, can be bot legs at same time and a tumor in a femur!!! 😢 Then, sevrre joint/muscle flu-like symptoms and stomach pain and nausea, etc., etc. And, these can last the duration of the medication of which my choices are injection every 6 months or IV yearly. Ug. The worst of it is that they affect the immune system. They pretty much are immunosuppressants as I read in a Harvard medical journal. I am already taking to immunosuppressant. I was on 3 but had to discontinue Plaquenil AKA hydroxychloroquine because after 20 years on it, it caused some tissue death in my retina.

I am praying for direction from the Lord. Both medication options can be a no-win.

Sorry, I see that I've written another novel! Two subjects here included in this so my apologies and my thanks for your time in Reading this.

Thank you guys so much for what you do and I want you to know how much I appreciate it! You devote so much time and care so deeply for all of us and want you to know that really is heard!

I hope you guys have a good day, Victory where you need it, and blessings all around!
Sunnyflower 😊🙃

@johnbishop snd @colleenyoung, ooops, for yo say I struggle with double vision off and on throughout the day as well as other eye pics which make it more difficult to type the Mayo names mentioned at the top of the post I'm replying to. S