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Anyone on Rybrevant (amivantamab-vmjw) for advanced NSC lung cancer?
Lung Cancer | Last Active: Jun 23 12:53pm | Replies (15)Comment receiving replies
@lijda thank you for sharing your experience navigating these difficult treatment pathways. I can imagine how hard it must be to consider more chemo after having sepsis. hugs! I saw in a previous post you said that you have multifocal lung cancer. I also have 20-30 nodules and have the genetic T790M EGFR mutation. I was wondering if you have something similar?
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@mamajite
I have the exon 21 L858R mutation. I poked around a little bit about it versus T790M but the landscape is littered with rabbit holes and I haven't absorbed enough to be articulate. Treatments for both are similar. I too had 20 or so nodules.
I thank you for your question. I also poked around a bit about multifocal; Mayo has done a lot of work with multifocal and some of it sounds encouraging. Maybe I should get treatment again. (I have appointments next week with both my local and my consulting oncologists.)
Which of course brings us back to the quality of life issues. I recently came across the following quote: “Manageable toxicity is not a label — it is an oxymoron.” Good luck to us all!