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Anyone with nocturnal only seizures?

Epilepsy & Seizures | Last Active: Jun 3 5:27pm | Replies (28)
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Profile picture for eltje @eltje

My first seizure in 1994 included 3 experiences several hours apart. The first was at 11:30 am ( maybe an aura or a complex partial), then about4pm the complex partial and then around midnight the tonic clonic in my sleep.
Then I believe I was seizure free til 2025. I have no pre warning or recall when I have the tonic clonic seizures and they happen in my sleep. As I am widowed now it is only the after affects that tell me I have had a seizure ( bloody and swollen tongue or the wet bed. Does that answer your question? Please feel free to ask more.

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Replies to "My first seizure in 1994 included 3 experiences several hours apart. The first was at 11:30..."
Chris Gautier, Volunteer Mentor | @santosha | Jun 3 5:27pm

Hi @eltje
Thank you for these extra details.
Like you, when I experienced tonic-clonic seizures during my sleep, I had no pre-warnings either. And the wet bed — just like yours — was a telling sign. The two other tonic-clonic seizures I experienced during the day started with an aura, followed by a complex partial seizure, leading into a tonic-clonic, all in a row.
Thankfully, you're seizure-free today on Keppra. How long have you been taking it and how have you been feeling? Are there any major challenges you're currently facing that you'd like to open up and discuss?
Chris

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