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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@mayofeb2020

@sunnyflower.. I took my bone density test a few years ago, and while i was talking to the technician, she told me her mom is a pharmacist and told her Bisphosphonates is a "bad" drug. My doctor prescribed it and i took it for one day. I felt so bad, my chest tightened up and it took a good ten days for it to go away. I told my doctor I'm not taking it. I'm due another bone density test in November, so I am faced with a decision again. I have known people who had been on this for years and still have bone fractures. I read extensively about the drugs and to be honest, they don't have guarantee that i am looking for. Maybe they are just not for me.

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sunnyflower | @sunnyflower | Sep 9, 2020

Helen and mayofeb 2020, I am trying to pick my jaw up off the floor and jump start my heart after reading your posts. Thanks so much for sharing with me!! I am blown away by your posts!!!!! May I ask some questions? Please only answer if you are comfortable and if not, no worries. Or, if you prefer, you could answer in a private message. I don't want to make anyone uncomfortable and I don't want to cross andy boundaries.

How young are you beautiful girls?? Have you broken any bones spontaneously aka, not injury/trauma? If so, which bones? Do you take steroids and if so, how many mg. per day and for how long? mayofeb202, which Bisphosphonate did you take?

I think it prudent for me to join the Rheumatology blog. It's going to be hard to keep up here but I want to try. I have so many appointments it's beyond belief but I will try.

Thank you so very much. My husband and I just discussed what you said (no names). We are both taken back. Ug. Take care of yourselves my friends. I would put some cute emoticons but this table won't allow me to do it anymore so hugs to you both!!!! Sunny

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