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Aortic Aneurysms – Introduce yourself & meet others
Aortic Aneurysms | Last Active: 13 minutes ago | Replies (939)Comment receiving replies
I'm Mitch. I was diagnosed in April with a congenital bicuspid valve and a thoracic aortic aneurysm measuring 4.7 cm. Does anyone have suggestions for getting good counseling for dealing with this condition? I prefer the option for in-person visits. I would like a counselor who is knowledgeable about the condition. That is proving difficult in the Tidewater Southside.
Replies to "I'm Mitch. I was diagnosed in April with a congenital bicuspid valve and a thoracic aortic..."
@mitchs Hi I had both a 5.2 cm aneurysm (repaired in 2020) and a bicuspid aortic valve, which was left in place during surgery as it was still highly functional. Bicuspid valves are a factor in the appearance of aneurysms. My bicuspid valve will have to be replaced at some point but now that the aneurysm is not there the replacement can be done via catheter.
My advice is to find a cardiologist who specializes in aortic diseases, not all of them do and it makes a huge difference. An aortic disease specialist will answer all your questions, give you guidance as to what to monitor and adjust (BP, exercise, etc) and will give you the best follow up protocol. Search in this forum for Dr Prakash's videos, he is anwell known and respected aortic disease specialist and that will give you an idea on what your are looking for. The best way to deal with this condition is to have answers and to have the right support.
If you have any specific questions feel free to ask!!
All the best
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@mitchs
My first thought was to keep searching for an in-person dr. That is soooo critical I believe. Good luck!