Thanks so much Helen! Boy, I am bombarding my Endocrinologist w/ questions. I have been researching these Bisphosphonates since my Endocrinologist at the time, wanted me to take them over 4 years ago. The sied-effects you mentioned were some of the very reasons I declined. But now, my recent bone density scan is so much worse! The risk of breaking bones and ending up in a wheelchair w/ high risk emergency surgery, are higher and worse than the horrible unwanted side-effects unless of course, both femurs break (both can at the same time) and the femoral tumor. Not to mention the way they work on the immune system. They like to say they are not immunosuppressants however I found a Harvard medical journal from 2011 that says they are. The work differently but the outcome is stil the same; increased risk for serious infections.

My husband and I are agonizing over what to do. I've already writtten a lot on the blog about this. I already have joint, muscle and soft tissue pain as well as my neuropathy pain. I can't imagine more and, having to live w/ them for potentially the duration of the medication. One is an injection every 6 months and the other is an IV yearly. Ug.

Is your doctor keeping an eye on routine bone density scans? Are you on a daily steroid? I pray not!!!! They destroy so much in the body. At least they have in mine!

All a quality of life decision. A no-win, the least of two evils. I and some other faithful prayer warriors are praying the Lord gives me direction.

Take the best of care, I really appreciate you!! Sunnyflower.

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