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Any phrase, idea that helped you navigate life with epilepsy?
Epilepsy & Seizures | Last Active: 20 hours ago | Replies (51)Comment receiving replies
@lisalucier @santosha @jakedduck1 @louissc as is so often the case with epilepsy, there’s a certain serendipity to the events in our lives. This morning I had two significant seizures, and as I was recovering, I reminded myself that I must be 'flexible' with my expectations and 'show myself grace' to live with this diagnosis. On the surface, these two concepts seem incredibly easy, but epilepsy means constantly dedicating and redirecting your life back to them. As I lay in bed recovering, I told myself that my day is not over. I just need to realign, just like I've done numerous times before. One day at a time.
Replies to "@lisalucier @santosha @jakedduck1 @louissc as is so often the case with epilepsy, there’s a certain serendipity..."
@dannoyes
Hi Dan!
Thank you for sharing this, especially on a day that had asked so much of you.
One of the most memorable insights I've recently heard came from Dr. James Jackson, a neuropsychologist invited to a recent episode of Seizing Life from Cure Epilepsy: that even when our symptoms don't change, we can change our relationship with them — treating epilepsy like an unwanted house guest that we learn to tolerate over time. And that's exactly what you showed us that day: being flexible with your expectations and showing yourself grace.
"My day is not over. I just need to realign." Those words are a beautiful example of changing our relationship with epilepsy rather than fighting against it.
Thank you for this contribution!
Chris
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@dannoyes
Hi Dan,
I’m glad you choose to see the sunshine of lights and not be blinded by the darkness of night.
Cheers,
Louis