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Celiac Artery Aneurysm: Anyone else with same illness?

Aortic Aneurysms | Last Active: Jul 28 11:21pm | Replies (569)

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@jurney01 Hi, in 2024, I was diagnosed late with superior mesenteric artery dissection and aneurysmal celiac tripod dissection. No diagnosis. On the recommendation of a vascular surgeon, I underwent genetic testing, and in addition to the alpha-1 antitrypsin deficiency, which I knew I had, I also had variants for Ehlers-Danlos and Marshall-Stickler, all connective tissue diseases. I had even suspected that it was also Segmental Arterial Mediolysis. Not being sure of the diagnosis or how to manage it, other than keeping my blood pressure low, is hard. Then, living with the thought of being hanging by a thread and knowing if something breaks, you're done for, doesn't help. Did they give you any diets to follow?

Hugs,
Fabio

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Replies to "@jurney01 Hi, in 2024, I was diagnosed late with superior mesenteric artery dissection and aneurysmal celiac..."

@fabiof
When you did the genetic testing did you have to tell them which genes to test or just ask them to test anything to do with aneurysms? Thanks.