← Return to RLS my living nightmare!

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shiner58 avatar

RLS my living nightmare!

Autoimmune Diseases | Last Active: Jul 13 7:31am | Replies (40)

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@shiner58 Oh my goodness, I’m so sorry that you have RLS. Nothing is worse. I suffered from RLS before I even knew it was something. Almost nightly I was walking holes in the carpet! For at least 45 minutes. Luckily, one of my doctors decided that enough was enough. She had me make an appointment with a neurologist who was a movement specialist. She helped straighten me out. She has me on 300mg gabapentin in the evening (if I remember!) and 600 at bedtime. It works so far! I must admit that I also take nortriptyline 30mg and seroquel 25mg at bedtime to prevent migraines. They do nothing for RLS. I have had RLS for 15-20 mostly miserable years. I certainly hope something works for you soon.

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Replies to "@shiner58 Oh my goodness, I’m so sorry that you have RLS. Nothing is worse. I suffered..."

@becsbuddy oh my goodness I haven’t heard of those drugs or a moment Neurologist, but I’m up again for the fifth night in a row, but I don’t get to sleep any not even through the night once I have to walk continually for seven or eight hours. I’m first time myself and knowing what else to do, I wish just to have relief. I’m about to go insane.

@becsbuddy I just don’t know. I guess I need to try to pump up the gabapentin. If my doctor thinks that would be good. She told me I absolutely could take no more than I have to call kidney damage.

@becsbuddy
My mother had migraines and RLS (she told me the cat was jumping on her feet!) I have had very good results with the same dose of gabapentin and seroquel at bedtime too. I keep a heating pad near the bed and usually it will take only 45 min. or so to settle down. Isn't it enough to make you scream in frustration?! This is a good sharing of possible resources. Thank you.